Dischem answers plea to assist Johannesburg twins with incurable disease

Northcliff twins diagnosed with hollow visceral myopathy - a degenerative neuromuscular disease of the digestive system - will now receive a year's supply of a special formula called Neocate Junior following an earnest plea on social media.

In a Facebook post this week a resident explained how the eight-year-old boys' family has had to fork out exorbitant amounts of money for the formula as medical aid does not cover it.

The mother of the twins Lauren says the boys were diagnosed with the condition between 2015 and 2018.

Unfortunately it [Neocate] Junior is the only one that works for my boys and we feel blessed that there is some kind of mechanism that allows them to get some kind of nourishment, but it is extremely expensive and takes its toll on the family. Unfortunately, our medical aid doesn't cover the feed.

Loren, mother

Dischem's Sherry Saltzman says the family will now be able to access the formula at their local pharmacy.

We are going to be helping them out with their formula for an entire year. I believe the formula a month for what they cost for the 43 tins works into the ballpark figure of about R21,500.

Sherry Saltzman

Click on the link below to hear the full conversation and more on the disease...


Recommended

by NEWSROOM AI
Read More
Best to travel during the day along the N3, says Toll Concession

Best to travel during the day along the N3, says Toll Concession

N3TC commercial manager Con Roux details some tips and statistics if you are travelling to KZN this December.

Tips to make your home less vulnerable to crime this holiday season

Tips to make your home less vulnerable to crime this holiday season

MultiNet Home Loans CEO Shaun Rademeyer says criminals are getting smarter and do their research beforehand.

On a mission to give status of black female lawyers a fillip

On a mission to give status of black female lawyers a fillip

Joanne Joseph spoke to the department's spokesperson Chrispin Phiri on the Afternoon Drive to find out more.

Former Public Protector top official says another court will do her case justice

Former Public Protector top official says another court will do her case justice

Basani Baloyi's lawyer argues that the decision to terminate her employment was unconstitutional, unlawful and invalid.

Public Protector Mkhwebane clears Baleka Mbete, Faith Muthambi in reports

Public Protector Mkhwebane clears Baleka Mbete, Faith Muthambi in reports

Eyewitness News reporter Kgomotso Modise gives details of the media briefing.

Former acting police commissioner Phahlane still on suspension with full pay

Former acting police commissioner Phahlane still on suspension with full pay

Joanne Joseph gets reaction from SAPU president Mpho Kwinika.

Popular articles
Are banks and corporates allowed to activate early December payment?

Are banks and corporates allowed to activate early December payment?

Wendy Knowler looks into the practice of many banks and corporates of “unilaterally” activating an early debit for December payment.

Case of man accused of killing Precious Ramabulana postponed to end of January

Case of man accused of killing Precious Ramabulana postponed to end of January

EWN reporter Kgomotso Modise gives an update following the death of Limpopo's student.

Amanda Black on reclaiming her power

Amanda Black on reclaiming her power

The "Afro Rockstar" sensation has released her second album, appropriately titled 'Power'.

[WATCH] 'I didn't poop, I peed,' kid excited that he went potty successfully

[WATCH] 'I didn't poop, I peed,' kid excited that he went potty successfully

Khabazela shares tweets and Facebook posts that have gone viral.

Karoo farmers forced to cull 'weak sheep' amid worsening Northern Cape drought

Karoo farmers forced to cull 'weak sheep' amid worsening Northern Cape drought

The drought is pushing farmers to the edge in the Northern Cape. A Karoo farmer says most farmers are downscaling their herds.